For an EU commitment to tackling rare diseases

The EESC organised a major conference entitled "For an EU commitment to tackling rare diseases" on 29 November 2024 from 9:00 am to 4:00 pm in Budapest Congress Centre.

With this event, the EESC demonstrated once again the commitment of civil society organisations to support the establishment of a European policy framework for rare diseases, bringing together all the stakeholders needed for a concerted strategy in the areas of research, prevention, digital, healthcare, social protection and investment in rare diseases, both at European and national levels.

This conference presented the EESC’s exploratory opinion drawn up at the request of the Hungarian Presidency of the Council of the EU on Leaving No One Behind: European Commitment to Tackling Rare Diseases, which was adopted at the October EESC Plenary Session (Rapporteur: Ágnes CSER, Civil Society Organisations - GR III, Hungary).