For an EU commitment to tackle rare diseases

The EESC, under the auspices of the Hungarian Presidency of the EU Council, is organising a major conference entitled "For an EU commitment to tackle rare diseases" on 29 November 2024 from 9:00 am to 4:30 pm.

With this event, the EESC will demonstrate once again the commitment of civil society organisations to support the establishment of a European policy framework for rare diseases, bringing together all the stakeholders needed for a concerted strategy in the areas of research, prevention, digital, healthcare, social protection and investment in rare diseases, both at European and national levels.